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April 2014
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rare diseases Press Releases

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By o2 mediainc.com
Special Edition airing February 28th, World Rare Disease Day focuses on raising awareness and offering hope and support for Rare Disease Community as part of the “Behind the Mystery: Rare and Genetic Diseases” series

By SMi Group
Pfizer, GlaxoSmithKline, Novo Nordisk, Findacure Foundation and many others will meet in London at SMi’s 2nd Annual Orphan Drugs & Rare Diseases Conference to share their best practices.

By Rochelle Weinstein
With the widespread acclaim of her debut novel, WHAT WE LEAVE BEHIND, Rochelle B. Weinstein has won the hearts of readers worldwide.

By American Conference Institute
ACI introduces its Guide to Orphan Drugs and Rare Diseases: Maximizing Opportunities and Overcoming Stumbling Blocks in the Designation and Development Process.

All Press Releases

By o2 mediainc.com
Special Edition airing February 28th, World Rare Disease Day focuses on raising awareness and offering hope and support for Rare Disease Community as part of the “Behind the Mystery: Rare and Genetic Diseases” series

By SMi Group
Pfizer, GlaxoSmithKline, Novo Nordisk, Findacure Foundation and many others will meet in London at SMi’s 2nd Annual Orphan Drugs & Rare Diseases Conference to share their best practices.

By Rochelle Weinstein
With the widespread acclaim of her debut novel, WHAT WE LEAVE BEHIND, Rochelle B. Weinstein has won the hearts of readers worldwide.

By NTSAD
First human trial for Tay-Sachs, Canavan and other rare enzyme deficiency diseases plans to begin in early 2013 thanks to NTSAD, the nation's oldest patient advocacy organization, which leads efforts to find a cure or treatment.

By American Conference Institute
ACI introduces its Guide to Orphan Drugs and Rare Diseases: Maximizing Opportunities and Overcoming Stumbling Blocks in the Designation and Development Process.

By Mary Ann Liebert, Inc., publishers
A clinically challenging and under-studied subset of diseases affecting the lymphatic system and grouped under the disease spectrum lymphangiomatosis and Gorham’s disease is the focus of a special issue of Lymphatic Research and Biology.

By Michele Westergaard
Citing the existence of over 6,000 rare diseases Joff Masukawa, Senior Director, Government Relations and Public Policy, Shire details his role in orphan product development and explains the importance of early engagement.

By Michele Westergaard
Conference Brings Together Industry Leaders to Overcome Commercialization Challenges and Enhance Patient Access to Orphan Drugs

By Jacqueline Tanzella
Campaign Brings Together Support from over 90 Corporations, Non-Profit Foundations, Research Institutions, Hospitals and Advocacy Groups; New Blue Jeans Denim Ribbon Unveiled To Promote Rare Disease Awareness

By Uplifting Athletes, Inc.
The Penn State Football Uplifting Athletes fifth annual Lift For Life® event was a tremendous success.



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